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Psoriasis

Hi Ladies! Hope you are having a wonderful week so far.

This is the third of our skin conditions discussions - if you suffer from psoriasis, we would love it if you could answer the below questions so that we can understand it more.

How many of you suffer from psoriasis?  What do you do to keep your skin condition under control?

Where do you get your information/advice regarding psoriasis? What information are you looking for?

What is the most frustrating thing about your skin condition?

If you could have anything, what would help you most with your psoriasis?

Thanks so much! x

Replies

I don’t suffer from psoriasis and don’t know anyone that does either @Bex 😊

I dont have psoriasis but my aunt does and i know she has not really found anything that works well

@Bex I don't have it, but my granddaughter does. And she only has it on her face which is devastating for a 12 year old girl. She is under the care of a dermatologist and has medication that she uses when it really flares up. Luckily she is able to cover up most of it with makeup. There are times you don't notice it at all and then other times when it is very noticeable. Couple that with acne that is also popping up for her now, she has to spend a lot of time on her face. I am hoping that she will outgrow it. She does sometimes get flareups in her scalp too. 

@Bex I don't suffer from it but my mom does and she hasn't really found anything that helps her with her skin problems.

@Bex I do not have psoriasis, but my mom does.  She has quite a bit on her scalp and her forearms.  She used to used a steroid cream all the time, but now she uses a shot that also helps alleviate her arthritis, so win-win.

@Bex I’m fortunate enough not to suffer from psoriasis. 

@Bex I don’t suffer from psoriasis and don’t know anyone who does.

@Bex Hi, having an awesome week hope yours is well too. I dont suffer from this nor anyone I know

@Bex I do not suffer from psoriasis but my husband does and it is really a bothersome skin disease.

@Bex Hi, I have suffered psoriasis since I was 14, so had it for 30 years now! Oops just disclosed my age! It has had a massive impact on my mental health too. I had it particularly bad through my 20s and early 30s. When I was pregnant with my first child it went away completely! And with my second. In my later years my P only breaks out in summer, and I am clear all winter. It is usually the other way round. My 8 year old daughter has been getting it since she was 3, as this is a genetic condition and thus far not curable.

I use emollient creams every day (diprobase) as always tend to have dry skin, and steroid creams (enstiller) when it’s particularly bad, but the steroids only take it away for a while, then it usually comes back tenfold! 

Over the years I’ve tried everything, light therapy is very effective and our hot summer last year really helped. It was the first summer my skin improved purely from sun exposure. I wish doctors could prescribe holidays to hot countries! I’ve tried Chinese herbal medicine, very expensive but worked for a bit.

As I’ve got older I’ve learnt to live with it but my daughter is my concern now as I know how much this disease can effect mental health too. It has held me back over the years as I was so self conscious of it and many people are ignorant of it.

Still waiting for a miracle cure! I was offered methotrexate which is very effective but has some bad side effects.

Any suggestions would be welcome x

 

 

 

@Angee123 I enjoyed your story. I wish they would find a way to eradicate this horrible skin disease. Yes, most people don’t understand it and look at you like you are a freak or something for having these “sores” on your body. My granddaughter has it on her face and scalp and it bothers her of course! She is 12 and it’s just when she is into makeup and jewelry and all those girlie things. 

I hope there is a cure in our lifetime!🙏🙂

@Bex I don't have psoriasis but I've seen how horrible it can be.  I really feel sorry for anyone that suffers from it.

@kelceyryder hey

Yes 12 is a horrible age to have this condition. I am trying to build confidence in my daughter by telling her it is nothing to be ashamed of and it makes her who she is. Unique and special. I tell her if people stare or make remarks, it’s their problem, not hers!

The treatments are improving and I believe there are some really effective (but expensive) treatments in the US. 

My daughters skin responds really well to the sun, and when I have flare ups in summer time I still walk around in my shorts and vests with my psoriasis very visible to show her is ok if it’s visible. Who cares about those people that don’t understand! We’re special people and we should be proud of who we are, with or without psoriasis! Don’t let it hold us back!

I hope your granddaughter is able to learn to accept it too. It’s not easy, but life ain’t easy!

Thank you for responding xxx

 

 

@Angee123 Fortunately my granddaughter has a very strong sense of self worth. If anyone can take it I think she can. I think it gets her down sometimes but she doesn’t show it! We will all be there to encourage her when and if she needs it!

@Bex I don't suffer from psoriasis, but my sister-in-law does. I don't know much about it.

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